You’d think there would be more time to write on the weeks
when Autism is coming in like a lamb instead of a lion. But alas, here I am after having thought
about a million posts but have been too busy to write them up. Ben has had a busy week. He’ll be getting his tonsils and adenoids
taken out soon (before year end, waiting on the surgery date still) as well as
a hearing test while he’s under anesthesia because he can’t relax enough to
have one awake. He also had a surgery
when he was 6 weeks old for Laryngomalacia that has to be repeated. The hearing test will take 1-1.5 hours
alone! The rest will take an hour
total. Long surgery for him. But it will help his sleep apnea and hopefully
also speech and developmental delays. Then
we had to go over to get some blood drawn (first time he had a blood
draw). For the first time I was
disappointed in Children’s hospital. The
man who took the blood was a whole story and then they had us waiting for an
hour longer than we needed to for the blood draw and after all that, we find
out that Ben has to give a Urine sample.
Oh, and here’s the bag to collect it (except now we’ve been there 3+
hours and he missed his nap and now he’s asleep on the nanny’s shoulder). Long day.
Day before he was at the burn clinic again getting his burns rechecked
from the eczema incident last week. His
face looks good but his skin is going to be super sensitive for a very long
time to all kinds of new things we’ll figure out along the way!
While we got decent sleep for 2 nights this week, I’m still
exhausted and have bags under my eyes.
But I’m happy and so is Ben. I
took him to lunch before his ENT/blood draw and for the first time without the
iPad to keep him occupied with a movie.
He did GREAT! I was amazed and
impressed. He didn’t have any meltdowns
or high pitched screams that can bring a room down. No hitting his head on the table or hitting/pinching/biting
me or himself. He just ate his lunch and
then used his napkin to “clean up” as the bill was paid and we got ready to
go. It felt surreal. I hope it can be replicated. Fingers double. Super. Quadruple. Crossed.
He also had a lot of interaction with other kids this week
where he didn’t know exactly how to interact, but was very curious about other
kids and that’s a big step. He just goes
up to them, crosses his hands behind his back and bends over to look at them/or
up at them with curiosity and then toddles off.
But it’s a step.
The little man endures a lot each week. Even if it’s just therapies and regular old
autism. This week had too many doctor
appts. and he still pulled through well.
Pumpkin patch this weekend with my good friend Julie and her
family. Looking forward to it as we
haven’t spent any time together in over a year.
Time to refill the happiness tank with quality friend time. Have a great weekend!
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